WOW after 35 years, there is a name for what I got !!!

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Posted by Angela on March 08, 19100 at 08:31:50:

Hello, Angela from Ohio here.

After 35 years of putting up with my skin disorder, I find that it has a name. WOW !!! I was always told that it was just serve dry skin and it would go away as I get older. WELL NOT !!! It is getting worst each year !! I had just recently changed family docotors and my new doctor has questioned me serveral times about the dryness of my arms, etc... and he finnally suggested a speicalist and to my disbelief the speicalist put a name to my disorder. ICHTHOSIS !!! My sister sent me this web site so I could learn more about it. Wow what a name !!! But best of all, now I know I am not alone. I thought I was the only one in this world to have this. My Mom has always just said that I was her baby who just never stopped peeling.... ha, ha !!! Well, I want it to stop !!

Did doctors know about Ichthyosis back 25 to 30 years ago??? and was there treatment for it then???

My new Doctor has me on Lac-Hydrin 12% cream, twice a day and Soriatane 10mg, once a day. The side effects of the Soriatan are scary !!! and WOW on the price !!

Does anyone knows of any discounts that I can receive for the either of the above. Because I think I will be on these for a while !!! I just can't amagine, 35 years worth of damage to my skin, that I would be healed in just one month.

Why with the Soriatane does your condition get worsen, before it gets better?????

I have sooo many questions... Would love to chat with any and all !!

Sincerely,
Angela here in Ohio



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