Posted by Michelle Mays on February 16, 19100 at 18:24:09:
In Reply to: Re: Pachyonychia Congenita - any knowledge to share?? posted by cindy on December 21, 1999 at 09:31:32:
: Suzanne, I lost your email address as I am new to this computer thing, but would love to correspond with you as well as "Kim" As I have said, we have a 5 year old son who is affected with the thickened nails on hands and feet, and oral plaques of the tongue. The only problems we have encountered are frequent infections of the nails, particularly when he plays outside in a park or during the hot summer months. On occassion, he has had blisters on the feet, which we have treated with Bactroban cream. Other than a hoarse vocal quality, he is doing well, and will enter elementary school in the fall of 2000. Please write back.