Re: LAMELLAR ICHTHYOSIS

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Posted by Kirsten on June 12, 19100 at 21:03:38:

In Reply to: Re: LAMELLAR ICHTHYOSIS posted by Paula H on May 21, 19100 at 14:08:51:

Hi,
I'm 34 w/lamellar icthyosis. Never spoken or met w/anyone else who had since I was a kid in a medical study.
What did you want to correspond about? I'm curious.
Kirsten

: hey, my name is paula too and i have ichthyosis :o) (i'm 18 )
: ...i thought that that was kind of funny..the name thing...ya know? well anyway :o)
: see ya later

:
: : HI, MY NAME IS PAULA, I AM 33 YRS. OLD, AND I HAVE LAMELLAR ICHTHYOSIS. LOOKING TO CORRESPOND WITH PEOPLE THAT HAVE THIS DISORDER.

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Comments:
: Hi,
: I'm 34 w/lamellar icthyosis.  Never spoken or met w/anyone else who had since I was a kid in a medical study.
: What did you want to correspond about?  I'm curious.
: Kirsten

: 
: : hey, my name is paula too and i have ichthyosis :o) (i'm 18 )
: : ...i thought that that was kind of funny..the name thing...ya know? well anyway :o)
: : see ya later

: : 
: : : HI, MY NAME IS PAULA, I AM 33 YRS. OLD, AND I HAVE LAMELLAR ICHTHYOSIS. LOOKING TO CORRESPOND WITH PEOPLE THAT HAVE THIS DISORDER.




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