Re: collodian baby

[ Follow Ups ] [ Post Followup ] [ Ichthyosis.com ] [ FAQ ]

Posted by Yvonne on May 15, 19100 at 12:21:03:

In Reply to: collodian baby posted by Ray Stehling on May 15, 19100 at 02:21:53:

: We have just had a baby boy 10 days ago and he has been diagnosed as a collodian baby. If there are any parents out there with experience in such matters, we would love to hear from you. We have so many questions and so far the doctors here have not been very useful, other than in saying that it is a very rare skin disorder. Has anyone noticed an improvement in their baby's condition?

Ray:

My husband and I have a 2 1/2 yr old that was born as a collodian baby and now has lamellar ichthyosis. We would bee happy to correspond with you and be of any help if possible. Feel free to e-mail us at Key1Now@aol.com. I look forward to hearing from you.

yvonne & anthony

Follow Ups:

Post a Followup

Name    : 
E-Mail  : 
Subject : 

Comments:
: : We have just had a baby boy 10 days ago and he has been diagnosed as a collodian baby. If there are any parents out there with experience in such matters, we would love to hear from you. We have so many questions and so far the doctors here have not been very useful, other than in saying that it is a very rare skin disorder. Has anyone noticed an improvement in their baby's condition?


: Ray:

: My husband and I have a 2 1/2 yr old that was born as a collodian baby and now has lamellar ichthyosis.  We would bee happy to correspond with you and be of any help if possible.  Feel free to e-mail us at Key1Now@aol.com.  I look forward to hearing from you.

: yvonne & anthony



Optional Link URL:  
Link Title:         
Optional Image URL:

[ Follow Ups ] [ Post Followup ] [ Ichthyosis.com ] [ FAQ ]