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 EHK
 Hands and feet.
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REBECCA Member Posts: 17 |
posted November 20, 2001 01:35 PM
   
My daughter rhiannon has thick plates of skin on her hands and feet , the dermatologist has suggested removing these in a surgical procedure but I'am not happy about this . Is this common? has anybody else had this done. thanks Rebecca. ------------------ IP: Logged |
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Glori Moderator Posts: 259 |
posted November 27, 2001 03:29 PM
When I was five years old, a doctor held me down and burned all the skin off my hands and knees with acid, and it all came right back. I have never heard of a surgical procedure that "permanently" removes Ichthyosis, it just can't, so surgery is a temporary solution to a life-long problem. I'm assuming because you are here, your daughter has EHK, but I can't imagine that surgery is the best option. It's something she will have all her life, so learning the everyday ways of keeping it under control are, in my opinion, the type of guidance your doctor should be giving you, not a quick fix. IP: Logged |
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Lisa Member Posts: 44 |
posted January 06, 2002 09:38 PM
Rebecca, This would be torture for your daughter. Under the thick plates is very tender skin. I have gotten blisters that when they peel off they expose this tender skin. There really is not a solution other than sanding down a few layers. I use a pumice stone. Occasionally I will even take a shaving razor and shave down the skin, but that's it. Most doctor are unfamiliar with this condition, you almost have to educate them yourself. This BB will help. I am 35 and have EHK. I've endured several procedures as has my mother who has it as well. The doctors even did a skin graft on my mom by putting normal skin over the dry skin. The only thing that happened is that the dry skin grew over the normal skin. So much for that. Anyway, don't let the doctors remove the skin, it will just be back in due time. Take care. Lisa IP: Logged |
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Elise Member Posts: 28 |
posted January 06, 2002 09:54 PM
It is hard to know what he is thinking without more information, but Glori is right about it just coming back. It would be more helpful to find a way to deal with it on a regular basis such as using plastic occlusion on hands and feet with some type of either skin softener or acid product. (need to be careful to not burn tender parts such as between toes and fingers) A really good long soak in a softener such as salt water usually will allow skin to be scraped off with a good pumice stone or callous remover. I have lamellar Ichthyosis and I have the same experience as Glori with taking off thick layers. Underneath the skin is tender and removing without soaking and rubbing causes bleeding and very sore spots. Everyone has different experiences and challenges though. For me I find it is best if I wear cotton socks and comfortable shoes as much as possible. Or socks with house shoes at home. I love to go barefoot but my feet get dry and calloused too quickly. I use stronger creams on my feet and take a long bath each night and work on them a bit each day. For me, using lac-hydrin or PDS woks well on keeping the thickness at bay. You are smart to ask as many people as possible. There are lots of good ideas out there and many of them will be helpful to you. Good luck, Elise IP: Logged |
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pauline5 Member Posts: 836 |
posted January 17, 2002 04:02 AM
Hi Rebecca, Surgery has never been suggested to me. I have to agree with everyone else, it is worthwhile finding less painful ways to manage the thickness of your daughter's hands and feet. I also have EHK and my feet and hand are extremely thick. Ever since I was 5 I have soaked my hands and feet and used a scalpel on them. When finished, I smooth the rough knife cuts down with some pretty coarse sandpaper. I don't know how sensitive your daughter's feet are, but from my experience it is best not to pare them down as low as the hands, as this makes them more tender to walk on. Also, sometimes the paring down can induce further cracking of the skin. You just need to experiment with what works for your daughter. I hope this is useful for you both. Pauline [This message has been edited by pauline5 (edited January 17, 2002).] IP: Logged |
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