The Ichthyosis Board
  General Discussion
  Oldest Person

Post New Topic  Post A Reply
profile | register | preferences | faq | search

UBBFriend: Email This Page to Someone! next newest topic | next oldest topic
Author Topic:   Oldest Person
mcjc
New member

Posts: 3
From:Ky
Registered: Jul 2005

posted July 20, 2005 08:47 PM     Click Here to See the Profile for mcjc   Click Here to Email mcjc     Edit/Delete Message   Reply w/Quote
My Uncle has the severiest form of this condition. He was not suppose to live to adulthood, he is almost 67 years old.
What is the oldest age recorded having this condition?
Thank you,
Johnny Caldwell

IP: Logged

immystique
Member

Posts: 171
From:Flagstaff, AZ USA
Registered: Mar 2005

posted July 20, 2005 08:49 PM     Click Here to See the Profile for immystique   Click Here to Email immystique     Edit/Delete Message   Reply w/Quote
Ichthyosis in general or a specific type?

IP: Logged

mcjc
New member

Posts: 3
From:Ky
Registered: Jul 2005

posted July 20, 2005 08:58 PM     Click Here to See the Profile for mcjc   Click Here to Email mcjc     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by immystique:
Ichthyosis in general or a specific type?

He has the Harlekin ichthyosis condition. He has no Oil or sweat glands. I am assuming this is part of the condition. He can not get overheated because he would die.

IP: Logged

Hearsay
Member

Posts: 801
From:Chicago, IL, USA
Registered: Jan 2004

posted July 20, 2005 09:44 PM     Click Here to See the Profile for Hearsay   Click Here to Email Hearsay     Edit/Delete Message   Reply w/Quote
That's certainly the oldest Harlequin I've ever heard of. I know that one family on here has a 19/20yo or so young man that is one of the oldest survivors of the same disorder. Up until the 1980s or thereabouts, most Harlequin babies were either stillborn or died shortly after birth. Even now some of them don't survive, especially if it is a surprise at birth.

IP: Logged

mcjc
New member

Posts: 3
From:Ky
Registered: Jul 2005

posted July 21, 2005 06:48 AM     Click Here to See the Profile for mcjc   Click Here to Email mcjc     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by Hearsay:
That's certainly the oldest Harlequin I've ever heard of. I know that one family on here has a 19/20yo or so young man that is one of the oldest survivors of the same disorder. Up until the 1980s or thereabouts, most Harlequin babies were either stillborn or died shortly after birth. Even now some of them don't survive, especially if it is a surprise at birth.

Doctors wanted to study him and run different kinds of test on him and see why he has survived so long, but he doesn't want to be a gienna pig as he says. He is quite active, he just can't get hot. I can remember going hunting with him when I was younger and he would have to get down in a stream and lay down to cool off. The best way I can describe his looks is he is like someone who has been severly burned. But he doesn't let him stop him from living. Even though people can be really cruel.

IP: Logged

All times are ET (US)

next newest topic | next oldest topic

Administrative Options: Close Topic | Archive/Move | Delete Topic
Post New Topic  Post A Reply
Hop to:

Contact Us | Ichthyosis Information

2000-2005 Ichthyosis Information All Rights Reserved.
The posts on these forums are copyrighted by the originator
and held by Ichthyosis Information and may not be reproduced
in any manner without permission of the originator.


Ultimate Bulletin Board 5.45c

In loving memory of Emil Pfisterer