|
 The Ichthyosis Board
 General Discussion
 Oldest Person
|
 UBBFriend: Email This Page to Someone! |
next newest topic | next oldest topic |
| Author | Topic: Oldest Person |
|
mcjc New member Posts: 3 |
posted July 20, 2005 08:47 PM
   
My Uncle has the severiest form of this condition. He was not suppose to live to adulthood, he is almost 67 years old. What is the oldest age recorded having this condition? Thank you, Johnny Caldwell IP: Logged |
|
immystique Member Posts: 171 |
posted July 20, 2005 08:49 PM
Ichthyosis in general or a specific type? IP: Logged |
|
mcjc New member Posts: 3 |
posted July 20, 2005 08:58 PM
quote: He has the Harlekin ichthyosis condition. He has no Oil or sweat glands. I am assuming this is part of the condition. He can not get overheated because he would die. IP: Logged |
|
Hearsay Member Posts: 801 |
posted July 20, 2005 09:44 PM
That's certainly the oldest Harlequin I've ever heard of. I know that one family on here has a 19/20yo or so young man that is one of the oldest survivors of the same disorder. Up until the 1980s or thereabouts, most Harlequin babies were either stillborn or died shortly after birth. Even now some of them don't survive, especially if it is a surprise at birth. IP: Logged |
|
mcjc New member Posts: 3 |
posted July 21, 2005 06:48 AM
quote: Doctors wanted to study him and run different kinds of test on him and see why he has survived so long, but he doesn't want to be a gienna pig as he says. He is quite active, he just can't get hot. I can remember going hunting with him when I was younger and he would have to get down in a stream and lay down to cool off. The best way I can describe his looks is he is like someone who has been severly burned. But he doesn't let him stop him from living. Even though people can be really cruel. IP: Logged |
All times are ET (US) | next newest topic | next oldest topic |
  |
|
Contact Us | Ichthyosis Information
© 2000-2005 Ichthyosis Information All Rights Reserved.
The posts on these forums are copyrighted by the originator
and held by Ichthyosis Information and may not be reproduced
in any manner without permission of the originator.
Ultimate Bulletin Board 5.45c