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Author Topic:   Anxiety disorders
lilmieri333
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Posts: 15
From:Texas
Registered: Jun 2004

posted August 05, 2004 04:23 AM     Click Here to See the Profile for lilmieri333   Click Here to Email lilmieri333     Edit/Delete Message   Reply w/Quote
I was wondering if anyone with ichthyosis has an anxiety disorder? I have one and I have LI. I have panic attacks and because I don't sweat I get terrible hot flashes and also start to panic when I get overheated even a little. I know they are two very different disorders but I am wondering if there might be some kind of connection for me. It's a long shot but i think there might be a slight chance : /
thanks,
Lauren

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Lisa Marie
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Posts: 160
From:NY
Registered: Jan 2001

posted August 05, 2004 10:08 AM     Click Here to See the Profile for Lisa Marie   Click Here to Email Lisa Marie     Edit/Delete Message   Reply w/Quote
I don't have an anxiety disorder, but I worry a lot. I have to have things planned way in advance so that I can see that I'll have enough time to do everything. I get overwhelmed easily, but as soon as I think the situation through, I'll calm myself down. One good trick is to write in a journal. I try not to let my CIE bother me because it just will make things worse. It's hard not to think about something that is bringing you discomfort, but the effort is worth it to make.
Have you been diagnosed by a proffessional? Have they put you on meds?

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R
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Posts: 218
From:
Registered: Feb 2003

posted August 07, 2004 10:06 AM     Click Here to See the Profile for R     Edit/Delete Message   Reply w/Quote
Yes, I admitted myself to a hospital for psychiatric evaluation because my panic attacks got bad to a point where I could barely function anymore. I was completely out of it for nearly six months with crippling stomach pains and a very foggy mental outlook on life and had to receive supplemental security income just to live. It too was around the summer time that things got really bad for me. Driving, and feeling overheated, as well as having horrible anxiety made my head feel like it was tunneling into some black abyss honestly.

I equate most of the anxiety I had/have to the burdon of living with ichthyosis and all of what that entails, not any one minor symptom of the condition. Although certain symptoms do play a role. For me the social/mental aspect is definitely as strong if not stronger than the physical. Anxiety also seems to run in my family but not to the extremes I've experienced.

[This message has been edited by R (edited August 07, 2004).]

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R
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Posts: 218
From:
Registered: Feb 2003

posted August 07, 2004 10:12 AM     Click Here to See the Profile for R     Edit/Delete Message   Reply w/Quote
.

[This message has been edited by R (edited August 07, 2004).]

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lilmieri333
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Posts: 15
From:Texas
Registered: Jun 2004

posted August 10, 2004 03:57 AM     Click Here to See the Profile for lilmieri333   Click Here to Email lilmieri333     Edit/Delete Message   Reply w/Quote
Hey R. I was wondering if anyone knew what I was experiencing. I don't know if my anxiety has anything to do with ichthyosis but I'm sure it plays a part. I am very shy and introverted so it is hard for me to be myself around people especially when I can tell they are looking at my skin. But, there have been few people who kind of back away when they see my skin or hear that I have something wrong with it so I don't think it is the cause. I'm very sorry you had to go through that. Anxiety is such a terrible state to be in, I know what you mean with the foggy mental outlook on life. Right now everything seems so complicated I don't know what to think or where to start. Could be me growing up though. But anyways thanks for replying I hope you're feeling better.

And thanks too Lisa Marie! I have been diagnosed...the doctor told me I had panic disorder and told me I could go on Zoloft (anti depressant) but I was kind of in denial and I thought I could grow out of it eventually. Hasn't happened yet. So now I'm kind of in the middle of everything.

[This message has been edited by lilmieri333 (edited August 10, 2004).]

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Chandra
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Posts: 668
From:Beaverton, OR
Registered: Nov 2000

posted August 11, 2004 12:08 PM     Click Here to See the Profile for Chandra     Edit/Delete Message   Reply w/Quote
Not everyone with ichthyosis has a panic disorder, but those of us who do often have it exacerbated by our ichthyosis because it can make our lives more difficult. This is true for anyone with a chronic illness or disability. That is why support groups can be so very helpful for folks and why some folks who may not benefit from a regular support group might benefit from occasional sessions with a counselor/therapist.

In my personal opinion, most of the people who don't have a panic disorder or depression but do have ichthyosis have had very supportive friends and family for their entire life, whereas those of us who do have panic disorders or depression have at minimum not had a supportive environment at least during parts of childhood.

Just my two cents!

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lilmieri333
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Posts: 15
From:Texas
Registered: Jun 2004

posted August 12, 2004 03:55 AM     Click Here to See the Profile for lilmieri333   Click Here to Email lilmieri333     Edit/Delete Message   Reply w/Quote
Chandra, I would agree with you but I do have a very supportive family. They understand my skin and do what they can to help. My friends are also very accepting of it, with mine you can barely tell by looking at me, you would have to look at my legs or my hands to know I have it. I am very fortunate for that reason.

I honestly don't know why I have panic disorder. I have to go to a therapist one of these days but it is so difficult to talk to my mom about this. Most parents don't want to hear their child has a mental illness...even if it is just anxiety or depression. My mom just kind of blew it off like I am just 'growing up' and eventually I will grow out of it. That might be true but I know I will be a lot better off if I just go to the doctor. But I do see what you mean, and I totally agree but...well, I don't know anymore how exactly they are related. : /

thanks for your two cents!

Lauren

[This message has been edited by lilmieri333 (edited August 12, 2004).]

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Darwinsmom
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Posts: 14
From:Ottawa Ontario Canada
Registered: Aug 2004

posted September 18, 2004 09:39 PM     Click Here to See the Profile for Darwinsmom   Click Here to Email Darwinsmom     Edit/Delete Message   Reply w/Quote
I've been waiting to get registered to post a reply to this message since I first read the post. Thanks to Laura getting the problems fixed I can now reply.

I've learned that overheating is experienced by people across the different forms of ichthyosis. Not everyone, but some. Maybe this is not the case for you, but when I am just starting to overheat I get a panic attack, like my heart is pounding and I'm going to run away or pass out. My friends have observed that I get a look like a deer caught in the headlights, my face turns scarlet, and I break out in a terrible sweat. My doctor tells me that it can be an adrenalin rush as your body fights to deal with a bout of overheating that it cannot quite manage.

For years my doctors told me it was menopause, but no amount of hormones could make these bouts of overheating go away. It was only after I read a post here about overheating on this bulletin board that I asked my doctor. It makes perfect sense to him, especially if the panic attacks come right before a full-blown "boil-over".

I can only sweat on my face, neck, and the middle of my chest because of the KFSD (keratosis follicularis spinulosa decalvans) that caused most of my hair follicles (and the sweat glands in the follicles) to scar over. The condition is called scarring alopecia. My skin does not scale the way many forms of ichthyosis block hair follicles.

I don't know if this helps any, but if there was a connection between your ability to sweat and the panic attacks it might be an answer. In this case it is not a psychiatric or mental health concern, just a malfunction of the body that causes the panic attack. Aren't panic attacks just the most awful thing?

[This message has been edited by Darwinsmom (edited September 18, 2004).]

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lilmieri333
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Posts: 15
From:Texas
Registered: Jun 2004

posted September 19, 2004 01:21 AM     Click Here to See the Profile for lilmieri333   Click Here to Email lilmieri333     Edit/Delete Message   Reply w/Quote
yes!! they are terrible. and the thoughts that come along with them are terrible. i think mine are psychological (i think thats the word?) moslty though. i've been told i might grow out of it because i am young(16) and i guess just growing up.

I can only sweat on my face, neck, and the middle of my chest because of the KFSD (keratosis follicularis spinulosa decalvans) that caused most of my hair follicles (and the sweat glands in the follicles) to scar over. The condition is called scarring alopecia. My skin does not scale the way many forms of ichthyosis block hair follicles.

when you say this do you mean that in most forms of ichthyosis it dosent allow hair to grow? like on arms and legs? just wondering because i have hair on my arms and legs

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threerxli
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Posts: 515
From:virginia
Registered: Jan 2003

posted September 19, 2004 08:41 AM     Click Here to See the Profile for threerxli   Click Here to Email threerxli     Edit/Delete Message   Reply w/Quote
My boys have hair on their legs and arms, but they also have a brown "dot" I guess it looks like in their pores on their body, mostly when we have to remove the scale. The dead skin (in this case x linked) blocks their pores and can make it difficult to cool down, they use to become extremely panicky, but now we have learned what to look for that leads up to the over heating. My oldest had that problem in soccer just last Saturday, his coach (new coach) kept playing him quarter after quarter and he had no time to cool down, or drink (wet his skin) and finally he just ran off the field to me and jumped into my arms....this is the first incident we have had in a long time. We calmed him down, took his temp. and dumped water over his body. Now before we blame the coach, realize it is important that I let me boys learn how to treat themselves and speak up for themselves too. At the time, I noticed my son becoming red faced, panicky, etc...but I left it up to him to decide when he had enough..he is ten. He said that he wanted to try (he must be that age of thinking he is indestructable) to finish out the game no matter how horrible he felt. That sends panic to me!!!! We reviewed the other options he could have used and talked about how he felt, and the signs leading up to it. I guess I can keep you posted if it happens again. Back to the post, my boys do have hair on their legs and arms, and they still can not always sweat effectively. Depends on each persons type of ichthyosis, treatment, etc. I have heard people describe it as feeling claustrophobic.... or like hot pricklys trying to come out of your skin. It was great writing to people on the board when my boys were younger to have an adult articulate the feeling..kids usually throw tantrums/panic.

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Marie
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Posts: 22
From:
Registered: Oct 2002

posted September 20, 2004 02:44 PM     Click Here to See the Profile for Marie     Edit/Delete Message   Reply w/Quote
I have had panic/anxiety attacks for, I think, all my life. I entered a study on it and it is still ongoing. It's been 18 years now. I take Xanax.
It tends to make me tired, but if I don't take it in the morning, I get all the signs: chest pain, startle response, seemingly inability to breathe and I start to pace. I used to drink to relieve them, and then found out through my shrink that my heavy drinking was caused by the panic. So be careful....

I attribute the panic to: A horrible childhood, my Mom's death when I was 14, an abusive father, being on my own since age 15 and mostly homeless.
I also attribute it to the effect itchy vulgaris had on me. People can be so cruel, because they just don't know. I had some horrible experiences as a teenager. That is why I left school. Those comments! I did go back & got a GEDand attended college.

This is way too long! Sorry! If you'd like to respond via e-mail or phone, please post it here

"Marie"

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eugen olteanu
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Posts: 1
From:romania
Registered: Oct 2004

posted October 14, 2004 11:59 AM     Click Here to See the Profile for eugen olteanu   Click Here to Email eugen olteanu     Edit/Delete Message   Reply w/Quote
true:ichtyosis is very good in tropical wheather.i don"t know english ! i live in romania.

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