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Author Topic:   help finding a dermatologist in central florida
erik schmidt
New member

Posts: 1
From:orlando florida
Registered: Jul 2003

posted July 14, 2003 03:39 PM     Click Here to See the Profile for erik schmidt   Click Here to Email erik schmidt     Edit/Delete Message   Reply w/Quote
Please help me. I live in orlando Fl.and need to find a dermatologist who knows what icthyosis is. Over the past year I,ve been to five different dermatologist who have been clueless as to how to treat or recognize.Any help would greatly appreciated.

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Sofie
Member

Posts: 114
From:Switzerland / USA
Registered: Jul 2001

posted July 15, 2003 03:21 AM     Click Here to See the Profile for Sofie   Click Here to Email Sofie     Edit/Delete Message   Reply w/Quote
Dear Erik

I suggest that you contact F.I.R.S.T. The Foundation for Ichthyosis and Related Skin Types. They should be able to give you names of doctors working in your area.

F.I.R.S.T.
650 N. Cannon Avenue, Suite 17
Lansdale, PA 19446
Phone: 215-631-1411
Fax: 215-631-1413
info@scalyskin.org www.scalyskin.org

From what you are writing I am guessing that you do not know exactly what type of Ichthyosis you have (and treatment to some degree depends on the type). Best way to find out is to have your doctor do a biopsy and/or a clinical screening. For a biopsy he will take a small piece of skin and analyze it.

What also might be interesting for you is to contact the National Registry for Ichthyosis and related Disorders http://depts.washington.edu/ichreg/ichthyosis.registry/
Phone: 1-800-595-1265

I do not have much experience with the Registry as I am not living in the US but other members of the Board might be able to give you more information. The FIRST-staff is always very helpful and they have a bunch of information for you that might help you.

Hope this helps - best wishes,
Sofie

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Keith Charsha
Member

Posts: 466
From:Southern California U.S.A.
Registered: Aug 2000

posted July 15, 2003 07:40 PM     Click Here to See the Profile for Keith Charsha   Click Here to Email Keith Charsha     Edit/Delete Message   Reply w/Quote
I think Merritt Andrews lives in or near Orlando. She might know a good one. Maybe first can give you her contact info.
Keith.

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