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Author Topic:   icthyosis and eczema
ericjenes
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Registered: Apr 2003

posted April 13, 2003 03:21 PM     Click Here to See the Profile for ericjenes   Click Here to Email ericjenes     Edit/Delete Message   Reply w/Quote
Hi-I have both icthyosis and severe eczema that has made things a little more complicated for me. I haven't met anyone else who has both, and would really like to find out if anyone else is in the same boat and what they have done. It seems like eczema complicates some treatments for icthyosis-like the suggestion I see most often on here taht tropical climates are helpful. I have more trouble in hot climates than in cold ones, because the heat and humidity cause my skin to itch a lot more. If anyone else has similar experiences I'd like to hear about them.

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Promiseland
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Registered: Feb 2003

posted April 14, 2003 08:30 PM     Click Here to See the Profile for Promiseland     Edit/Delete Message   Reply w/Quote
I was told by my mom that as a baby I had eczema on my scalp, but I have no recollection of that, and have not been bothered by it since.

I have done a lot of postings in the last few months regarding the weather and vulgaris. I do not know what type of ichthyosis you have, but vulgaris (and maybe similar types such as x-link) has symptoms that are highly affected by the weather. I am also told that other types of ichthyosis are not. If you have one of the rarer but more severe types, you may not like the summer, especially if weather during the other seasons actually aggravate the build-up of scales.

If you have vulgaris, however, living year-round in a tropical climate would be the closest to a cure as you would find on planet earth. Even for severe cases, with "heat intolerance," like mine. I had the fortune of living in a real tropical climate for six months almost 30 years ago (Singapore---right on the equator), and the symptoms and discomfit of vulgaris DISAPPEARED. I have been living in Hawaii for 13 years now and air-conditioning is my greatest enemy.


[This message has been edited by Promiseland (edited April 14, 2003).]

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Lou
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From:Britain
Registered: Apr 2003

posted April 27, 2003 04:24 PM     Click Here to See the Profile for Lou     Edit/Delete Message   Reply w/Quote
Hi My name is Lou and I have had ichtyosis and excema pretty much since i was born (19 uears ago) so im not sure if it complicates matters or not. I find any weather has its draw backs but whenever I go to the South of France for a couple of weeks, most of my excema and ichthyosis clears up. At first it gets worse and it is itchy because it is hot but then I swim in the sea (stings like crazy) so it gets better. Hope this helps, let me know if you want to know more

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Keith Charsha
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From:Southern California U.S.A.
Registered: Aug 2000

posted April 27, 2003 11:56 PM     Click Here to See the Profile for Keith Charsha   Click Here to Email Keith Charsha     Edit/Delete Message   Reply w/Quote
Eric, Promise, Lou,
Can one of you explain to me how you can tell the difference between eczema and Ichthyosis? I've got EHK and there is no way in the world I would know if I had eczema also. How can you tell if what you are looking at isn't your Ichthyosis and is eczema? Taber's Cyclopedic Medical Dictionary describes it as: An acute or chronic cutaneous inflammation with erythema, papules, vesicles, pastules, scales, crusts, or scabs alone or in combination. They may be dry or produce a watery discharge, with thickening, infiltration, and a variable amount of itching or burning. ECZEMA IS MORE THE DESCRIPTION OF A SYMPTOM THEN OF A DISEASE.(direct quote also). SYN: Dermatitis. To me that sounds like any or all types of Ichthyosis at one stage or another. Just to be fare I looked up Ichthyosis, here is what it says: A condition in which the skin is dry and scaly, resembling fish skin. Because Ichthyosis is so easily recognized, a variety of diseases have been called by this name(easily recognized???, is that why so many of us can't get a definite diagnosis without a biopsy or blood test because it is so easily recognized??, who are they kidding.). Let me know how you guys were able to make the distinction between the two.
Keith.

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Promiseland
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Registered: Feb 2003

posted April 29, 2003 02:39 PM     Click Here to See the Profile for Promiseland     Edit/Delete Message   Reply w/Quote
Hi Keith,

I am sorry but I don't know anything about eczema except that I was told that I had it on my scalp when I was an infant. For all I know it might have been a wrong diagnosis since ichthyosis was also present.

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R
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Registered: Feb 2003

posted April 29, 2003 08:38 PM     Click Here to See the Profile for R     Edit/Delete Message   Reply w/Quote
When I lived in california and was working on hot summer days I would get exzema like red blotches on my legs and red bumps on my arms and I just figured it was heat rash or an allergic reaction to the lac-hydrin. The exzema i've seen on other people looks almost like little patches of ichthyosis vulgaris but not as flakey. When I was a born my parents thought I had somthing called cradle cap.

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Chandra
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From:Beaverton, OR
Registered: Nov 2000

posted April 29, 2003 09:16 PM     Click Here to See the Profile for Chandra     Edit/Delete Message   Reply w/Quote
Cradle cap, also called being a "Collodian Baby" is common for infants with icthyosis. I could see how it might be mistaken for eczema.

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milomilk
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From:Melbourne,Australia
Registered: Aug 2000

posted May 07, 2003 02:24 AM     Click Here to See the Profile for milomilk   Click Here to Email milomilk     Edit/Delete Message   Reply w/Quote
I have EHK and have constantly itchy legs which my dermatologist believes has developed into eczema over time due to the constant scratching I do(to relieve the Itch!)Following the recommendation to keep my legs really well moisturised with the just mentioned glycerine and/or sorbelene I have noticed a hugh difference...I'm not constantly scratching!!Dryness of skin seems to promote itchiness.The scratching also contributed to constant infection on my legs.What I continually ask myself,is why has it taken me so long to work some of this stuff out!!!
Cheers!

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