The Ichthyosis Board
  General Discussion

Post New Topic  Post A Reply
profile | register | preferences | faq | search

UBBFriend: Email This Page to Someone! next newest topic | next oldest topic
Author Topic:   disability
New member

Posts: 3
From:ft.jennings,oh usa
Registered: Jun 2002

posted September 12, 2002 03:14 PM     Click Here to See the Profile for RT   Click Here to Email RT     Edit/Delete Message   Reply w/Quote
I have ichthyosis lamellar and have worked in a hot factory for 30 years.I had to keep wet towels on me all the time to keep me coolso I wouldn't over heat.A co-worker asked me why I didn't try to get SS disability.I didn't know that I could,so I went to a derm and right away he put me on sick leave and told me to file for SS.I filed for SS in July.My derm put me on sick leave until 9-19-02.Now my derm is retiring so I went to another derm and he extended my sick leave.On the form that he filled out for my leave they want to know my return date for work.He put down never.I saw a post from Glori that in the past we were automatically eligible for SS but not sure about it now.Does any body know how to find out if I am eligible to recieve SS and how long does it take.The SS office told me that I couldn't be working to get SS benefits.I don't want to go back and suffer in that hot factory any more but if I don't recieve any benefits from SS I will half to even if my derm says I will never retun to work.Sorry for the long post.

IP: Logged

Keith Charsha

Posts: 466
From:Southern California U.S.A.
Registered: Aug 2000

posted September 13, 2002 09:44 AM     Click Here to See the Profile for Keith Charsha   Click Here to Email Keith Charsha     Edit/Delete Message   Reply w/Quote
I know a few pepole who have applied for SS and/or Disability. You don't automatically get approved the first time everytime. A friend of mine who has Ichthyosis applied 4 times and was denied every time until she got a disability lawyer and then she was approved right away. It really depends on the state you're in and what your case worker is like. It is hard to live on disability/social security alone and I'm not sure if you are allowed to work while on them withoiut losing benefits. I would say the thing to do is go to your states social security website or disability website and see what info they can give you. I tried the link that Glori posted for california's rehab site putting in Ohio for you and one didn't exist under that format. You may also contact F.I.R.S.T. for more information, I'm sure they may be able to help you out with some contacts.

IP: Logged


Posts: 19
Registered: Jul 2002

posted September 13, 2002 02:52 PM     Click Here to See the Profile for pestilence     Edit/Delete Message   Reply w/Quote
I have Ichthyosis Vulgaris and applied for SSI and got it on my first application. I also have severe depression and I made that well known. I was hospitalized for depression and drug use and I left work. It took about 6 months for SSI to come through. I was living in a shelter and was near homeless a couple of times. It's a long process and you abolutely must have sombody on your side to support with with all the paperwork, interviews and whole process. Call your local congressmam. Call sombody that works for the state health division. Also SSI isn't a very large amount of money. I get 750 a month and with bills to pay and a 400 dollar a month rent I often have to not eat for a few days. Not to mention I can't afford meds for my ichthyosis since lac-hydrin is not covered by insurance. I wish you luck and hopefully you'll get it on your first application. They say that if you don't get it your first time chances are less than 20% that you will get it when you appeal.

IP: Logged


Posts: 668
From:Beaverton, OR
Registered: Nov 2000

posted September 14, 2002 01:18 AM     Click Here to See the Profile for Chandra     Edit/Delete Message   Reply w/Quote
I have never known someone to get SSI on the first try, but I have never heard of someone getting refused SSI if they have an attorney help them with it. There are many attorneys that will assist you in making a claim, it's just a matter of how much money you want to give up to them. Typcially your claim, once it is approved, is backdated to the date you originally applied. If you end up needing an attorney, hopefully this is enough to pay the attorney's bill.

SSI does have a policy allowing people to continue to work, but it sets limits on how much you can earn before your benefits are effected.

Pestilence, since you are on SSI, have you ever attempted to get food stamps or any other sort of social service provisions? If you live anywhere near a metropolitan area, there are probably food banks that you can visit to tide you through the lean times. My grandma happens to volunteer at one in Washington and you pick and choose from what they have and fill up a box. You can come back every week too. Some food banks are only open once a week or a few times a month, others are open five days a week.

Pestilence also has it right in contacting a congressperson. It can be very helpful as it is the sort of thing your congressperson is there to help you with! You probably won't ever talk to the senator or representative but will be working with one of their staff members.

IP: Logged


Posts: 19
Registered: Jul 2002

posted September 14, 2002 09:10 AM     Click Here to See the Profile for pestilence     Edit/Delete Message   Reply w/Quote
I lucked out because my theropist also worked for the state health program and I think that is why I got accepted for SSI the first try. I can apply for foodstamps but it would only be a small amount of money around 17 dollars or so. I live in a very isolated area so there are no food banks or soup kitchens or anything like that accept I noticed a few churches that do food drives.

IP: Logged


Posts: 259
From:Elk Rapids, Michigan
Registered: Aug 2000

posted September 14, 2002 09:47 AM     Click Here to See the Profile for Glori   Click Here to Email Glori     Edit/Delete Message   Reply w/Quote
For the Ohio Rehabilitation Commission, go to
In my other post I mentioned that it used to be automatic but that may have changed. It used to be that Ichthyosis was just considered pretty awful and you could not possibly work if you had it. Now of course we know differently.
It is a recognized disability by Social Security and does entitle you to SSI, but of course that's no guarentee you will get it. I would imagine in your case their issue is that you have been working all along, why is it suddenly you can't work anymore?
The Ohio Rehabilitation Commission appears to offer some kind of help in determining your eligibility for SSI and provides some assistance applying for it.
SSI isn't usually a lot of money to try and live on, in your case it might be different because you have worked for 30 years and been paying in a long time, but it wouldn't hurt to find out what you are entitled to and see about getting some training to change jobs to something more suitable for your needs.

IP: Logged

All times are ET (US)

next newest topic | next oldest topic

Administrative Options: Close Topic | Archive/Move | Delete Topic
Post New Topic  Post A Reply
Hop to:

Contact Us | Ichthyosis Information

2000-2005 Ichthyosis Information All Rights Reserved.
The posts on these forums are copyrighted by the originator
and held by Ichthyosis Information and may not be reproduced
in any manner without permission of the originator.

Ultimate Bulletin Board 5.45c

In loving memory of Emil Pfisterer