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Below
are pictures that people have sent us, in an effort to help raise
awareness about ichthyosis. Thank you for sharing your
pictures. You're helping everyone who comes here anxious to see what
ichthyosis looks like in real life.
Click
on the thumbnails to see larger pictures.
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3
month old boy with X-Linked Ichthyosis |
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Baby
girl with Epidermolytic Hyperkeratosis (EHK) |
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Baby
boy "Winson" with Lamellar Ichthyosis |
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Baby
boy "Shane" with K.I.D. Syndrome |
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Adult
man with EHK |
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Baby
boy "Marley" with Lamellar Ichthyosis |
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shortly after birth
six months
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Mom and daughter with EHK |
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Adult man with Lamellar |
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You
could be here! |
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This
page is still being developed; we need your help to finish it!
We’d like to include pictures of people with ichthyosis (you
know, real-life pictures—not the kind you see in medical
journals). Pictures would be useful to illustrate different levels
of severity, what ichthyosis looks like at different ages, and
maybe how similar in appearance different types may look (making
accurate diagnosis difficult), and just to represent to people who
are not familiar with ichthyosis what we might look like if you
saw us on the street, and what we do in everyday life (everything
everyone else does!). You don’t have to have pictures in
electronic form—you can send us pictures through regular mail,
we’ll scan them, and send them back to you.
The
University
of Erlangen website has some fairly clear pictures of ichthyosis.
Do
a search on www.emedicine.com.
They've got some good information pages on ichthyosis, and they
include some good pictures. For example, here's their page on lamellar
ichthyosis.
The
Disease
Information Pages on www.scalyskin.org
(FIRST's website) have some excellent background information and
drawings that distinguish between many of the types of ichthyosis.
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