Revised:  07/09/2004














Below are pictures that people have sent us, in an effort to help raise awareness about ichthyosis.  Thank you for sharing your pictures.  You're helping everyone who comes here anxious to see what ichthyosis looks like in real life.


Click on the thumbnails to see larger pictures.



3 month old boy with X-Linked Ichthyosis


x-linked.jpg (21682 bytes)   x-linkedb.jpg (23244 bytes)  x-linkedc.jpg (48342 bytes)



Baby girl with Epidermolytic Hyperkeratosis (EHK)


Abigail.jpg (35675 bytes)   abigail2.jpg (36847 bytes)



Baby boy "Winson" with Lamellar Ichthyosis

2days.jpg (77411 bytes)  3months.jpg (57059 bytes)  3months2days.jpg (78864 bytes)

3months5days.jpg (66311 bytes)  3monthssleeping.jpg (63167 bytes)  4months.jpg (57622 bytes)

4months2weeks.jpg (49284 bytes)  hospital.jpg (35387 bytes)


Baby boy "Shane" with K.I.D. Syndrome


shane.jpg (31818 bytes) shane2.jpg (58416 bytes) shane3.jpg (69530 bytes)

shane4.jpg (78880 bytes)  shane5.jpg (88877 bytes)  shane6.jpg (89667 bytes)

shane7.jpg (67874 bytes)  shane8.jpg (59553 bytes)  shane9.jpg (80295 bytes)

shane10.jpg (66694 bytes)  shane11.jpg (91352 bytes) shane12.jpg (77357 bytes)

shane14.jpg (94323 bytes) shane15.jpg (85640 bytes) shane16.jpg (95519 bytes)

5halfmonths17.jpg (101516 bytes) 6months18.jpg (121799 bytes) shane13jpg.jpg (101172 bytes)

6months.jpg (144463 bytes) thanksgiving20.jpg (112435 bytes)


Adult man with EHK





Baby boy "Marley" with Lamellar Ichthyosis 

PA300015.JPG (200664 bytes)  PA300016.JPG (201192 bytes)  shortly after birth

P5060088.JPG (199554 bytes)  six months


Mom and daughter with EHK 





Adult man with Lamellar


You could be here! 






This page is still being developed; we need your help to finish it! We’d like to include pictures of people with ichthyosis (you know, real-life pictures—not the kind you see in medical journals). Pictures would be useful to illustrate different levels of severity, what ichthyosis looks like at different ages, and maybe how similar in appearance different types may look (making accurate diagnosis difficult), and just to represent to people who are not familiar with ichthyosis what we might look like if you saw us on the street, and what we do in everyday life (everything everyone else does!). You don’t have to have pictures in electronic form—you can send us pictures through regular mail, we’ll scan them, and send them back to you. 


 More pictures

The University of Erlangen website has some fairly clear pictures of ichthyosis.


Do a search on  They've got some good information pages on ichthyosis, and they include some good pictures.  For example, here's their page on lamellar ichthyosis.



 Different Types

The Disease Information Pages on (FIRST's website) have some excellent background information and drawings that distinguish between many of the types of ichthyosis.










Copyright © 2001 Ichthyosis Information

This information is not intended for use without professional medical advice.

Disclaimer   contact the site webmaster