Thank you for visiting our Site. This
submitting any personal information. By using the Site, you are
practices may be changed, but any changes will be posted and changes
will only apply to activities and information on a going forward, not
only. If you link to other web sites, please review the privacy policies
posted at those sites.
Collected and Stored Automatically
When you visit our Site to
browse, read pages, or download information, we automatically collect
and store the following information:
The Internet domain and IP
address from which you access our portal;
The date and time you access
The files requested and
pages you visit; and
If you linked to
from another Web site, the address of that Web site.
We use this information to determine
how effective our site is, ways that we can improve, how people find our
site, and what pages people are most interested in. This information is
used for internal purposes only.
This site collects cookies. See
for more information about cookies.
You Choose to Provide
To use this Site’s Bulletin
Boards, you are required to register and provide a User ID and a valid
email address. Other information may be provided voluntarily. If you
use your real name as your User ID (or otherwise reveal your true
identity within Bulletin Board postings) your association with
ichthyosis may be picked up by various internet search engines. In this
case, persons performing an internet search on your name may find search
results that point to this Bulletin Board and your postings. Users of
this site’s Bulletin Boards often post very personal information
regarding their life with ichthyosis. If you would be uncomfortable if
co-workers, potential clients, neighbors, or others were to find your
postings on these Bulletin Boards by performing an internet search on
your real name, then you should register on this site’s Bulletin Boards
with a User ID other than your real name.
We do not provide,
sell, or lease personally identifiable information to any third
parties. As an exception, to protect Site visitors and the general
welfare, the Site will release personal information when necessary in
order to comply with the law or regulatory authorities.
Web Site Security
For web site security purposes and to ensure that this service remains
available to all users, this computer system employs software programs
to monitor network traffic to identify unauthorized attempts to upload
or change information, or otherwise cause damage.