Miscellaneous Hints
Occlusion
Many people with
ichthyosis find that the occluding their skin (creaming it, and then
covering it in some type of plastic) greatly helps to shed the
scales that they want to get rid of. When you occlude the skin, it
may burn or itch more than normally. Several things can minimize
the discomfort: only occluding portions of the body rather than the
entire body (just the arms, the legs, even just the hands),
occluding just before bed and sleeping through most of the
uncomfortable hours, using a milder cream or lotion than you
normally would (a mixture of half water, half propylene glycol seems
to be a favorite that people use when occluding).
To achieve the
occlusion, some people use Saran Wrap (or other kitchen plastic
wrap), and secure it with bandages (I've used horse wraps to do
this! Other people have used Ace bandages, etc.). Also, several
companies make occlusion suits (pants, tops, booties, etc.). Check
out
Delasco's webpage for information on their line of occlusion
suits. You may want to try out the Saran Wrap method first, to see
if you like the results of occlusion. However, if you do like what
occlusion does, an occlusion suit is well worth the investment, as
it is much more comfortable.
Other Hints
Jill wrote:
On my lips I use Burt's Bee's
chap stick, a natural line of products available at most natural
foods stores. I try to drink 8 glasses of water a day and take
flax seed, borage seed, or evening primrose oils (all essential
fatty acids) by capsule internally to help. The best sunblock
I've found that doesn't irritate my skin and actually prevents
me from burning is Aubrey Organics Titanium Sunblock SPF25. It
is available at larger heath food stores.
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